Health in Our Hands: Bridging lived experiences of health from patient, community, biomedical and artistic perspectives
When:
—
Venue:
Birkbeck Clore Management Centre
How do we come to know health—our own or that of others? In a time marked by global crisis, inequality, and rapid technological change, lived experience offers vital, yet often marginalised, forms of knowledge. This one-day conference brings together Early Career Researchers across disciplines to explore health through the lens of lived experience: its stories, its silences, and its capacities for change.
This conference will offer critical, creative, and collaborative contributions that rethink what counts as knowledge, who counts as expert, and how health is felt, represented, and transformed. It will include approaches from the arts, natural sciences, humanities, and social sciences, and foreground co-production, public engagement, and inclusive research practices.
We are committed to accessibility and inclusivity. The conference will be hybrid, and travel support is available for UK-based ECRs.
This conference is free and funded by the Institutional Fund for Research Cultures Wellcome Trust Grant to Birkbeck, University of London. It is organised by members of the ECR co-production of health network at Birkbeck.
Health In Our Hands: Bridging lived experiences of health from patient, community, biomedical and artistic perspectives
9:45am: Welcome – drinks and pastries
10:15 am to 12:00pm: Technology, AI and digital health
Dr Xin Zhan (Cambridge University) - “I Really Feel Heard by AI”: Digital Holding, Care-Patch, and the Politics of Listening in Mental Health Care Under Crisis. (15 mins)
Linda Eniola Adeyemo (Birkbeck, University of London) - AI Companions as MicroAgency: Lived Experience, Marginalisation and Health. (lightniing talk, 8 mins)
Dr Shardia Briscoe-Palmer (University of Nottingham) - The Digitalisation of Sexual and Reproductive Healthcare: Black Women's In/Exclusion of Prevention, Services and Care. (15 mins)
Dr Cecily Klim (University of New South Wales, Australia) - Digital Contraceptives as a Symptom of, Not a Solution to, the Contraceptive ‘Crisis’. (15 mins)
Dr Erin McCloskey (University of Liverpool) - PPIE/co-production shaping AI tools for multiple long-term conditions. (lightening talk, 8 mins)
Dr Farhin Ahmed (Queen Mary University of London) - “That gives me independence”, Experiences of assistive technology among people living with chronic obstructive pulmonary disease and their carers (study and results). (15 mins)
12:00pm 1:00pm Lunch - catered
1:00pm to 2:25pm: Arts, creativity and embodied illness knowledge (in Clore Lecture theatre)
Rachel Gippetti (University of Plymouth) – Gyroscope. (performance, 20 mins)
Emily Berry (Birkbeck, University of London) - 25 Frozen No Thank Yous. (15 mins)
Dr Lizzie Merrill (Surrey University) - Photofantasy: A Radical Language of Cancer Experience. (15 mins)
Dr Sofia Layton (Durham University) - The Artistic Remediation and Activation of Postmortem Foetal Micro -CT Medical Data as a Careful Creative Methodology. (15 min paper)
2:25 to 2:40pm break – drinks and pastries
2:40pm to 4:20pm: Co-production and participatory methodologies in health research
Heather Mah (Queen Mary University of London) - Navigating Lived Experience in Multiple Sclerosis Research. (15 mins)
Anne-Marie Creamer (Central Saint Martins), Dr Hannah Zeilig (London College of Fashion) & Dr Rachel Marsden (University of the Arts London) - IRL: Working with Lived Experience - Issues of Creativity, Ethics and Emergent Knowledges. (lightning talk, 8 mins)
Carmel Cardona (Kings College London) - Surviving Cancer: Epistemic Justice and Creative, Embodied Research Methods. (lightning talk, 8 mins)
Pauline Ferrick-Squibb (Arts University Bournemouth) - The tactile photograph: Combining photography and craft practices for the co-production of lived experiences. (15 mins)
Dr Elizabeth Storer (Queen Mary University of London) Dr Suad Duale (CAMHRA, SOAS), Dr Nikita Simpson (SOAS) - Listening to Housing Distress. (15 min)
Emediong Jumbo (Kings College London) - Black Disabled people as experts: valuing lived experiences in researching the intersection of race and disability in the UK. (8 mins)
Professor Eddy Davelaar (Birkbeck, University of London).
4:20pm to 4:35pm break – drinks and pastries
4:35pm to 5:55pm: Narratives and health humanities
Alison Round (Bristol University) - Auto-narratives of pain – simple and straightforward or complex and contained. (15 mins)
Dr Douglas Basford (University at Buffalo, State University of New York) - Will We All Become Sinkhole People?”: Reading Long COVID Lifewriting with the Planet in Mind. (15 mins)
Jack Elliott McIntosh (Birkbeck, University of London) - Reframing Autism through lived experience narratives. (15 mins)
Sophie Fennelly (University of Leeds, UK) - Black British Mental Health in the Hostile Environment: How the Generic Allowances of Poetry Can Reveal Affective Knowledge. (15 mins)
6pm: Keynote - Dr Siobhan O'Connor (Kings College London)
30 min talk + 15 mins discussion
6:45pm onwards drinks – catered
Contact name: Matthew Barrington
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